The Registry Consortium has been growing. There are now 10 centers in the registry, with 7 actively entering data and an additional 3 close to data entry.
Growth in the past year has been helped considerably by a one-year grant from the Department of Medicine at Dartmouth. This has helped to sustain the efforts of our programmer, who has been maintaining and upgrading the REDCap template, training centers in how to use the system, and organizing data downloads. Sustaining the overall REDCap template requires work. Tasks such as making updates, organizing downloads, writing data-checking algorithms, setting up training sites, adding features to accommodate foreign sites, incorporating questionnaires in different languages, and researching or developing new REDCap external modules/plugins to achieve registry goals take ongoing effort. It is important to sustain this effort. However, the Department of Medicine grant ends in April 2020 and we are looking for ways to sustain the registry in the absence of this support. Funding is needed to sustain a portion of our programmer’s salary so he can continue to work on the registry. The amount proposed would cover approximately 20% of the programmer’s salary (one day a week). He is currently spending this amount of time on registry activities.
Most hyperbaric providers have experienced insurance denials for indications approved by the Undersea and Hyperbaric Medical Society. The only cure for these denials is reliable data. The Multicenter Registry for Hyperbaric Oxygen Therapy Registry Consortium is designed to provide these data. The Registry Consortium is a database designed to gather a consistent set of measures about the use, outcomes, and safety of hyperbaric oxygen treatments from hyperbaric centers around the world.
Click here for more information on the Registry Consortium
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